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Understanding inequalities in cancer experiences and outcomes

Published 20 Sep 2021 1 minute read

Inclusion
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The Brief

Macmillan Cancer Support needed to understand why the national Cancer Patients Experience Survey documents that ethnic minority, LGBTQ+ and older cancer patients consistently report more negative experiences and outcomes in cancer services.

Our approach

We created an online community with 90 ethnic minority, LGBT or older (aged 65 to 90) people living with cancer, as well as 24 healthcare professionals, academics and diversity specialists. Over 2 months, we explored experiences, unmet needs and potential inequalities across the cancer journey.

Impact

The research generated a wealth of insights used to shape policy, train healthcare professionals, develop community support, create tailored campaigns and engage seldom-heard patients in service design. Taking part also had a profound therapeutic impact on many cancer patients, who talked about issues they had never felt able to discuss before.

The project was Finalist for two Awards : MRS Healthcare Research and HSJ

Versiti’s online approach represents a cost-effective means of engaging with a wide group of individuals, many of whom are often harder to engage – delivering rich and deep responses and opportunities for participants to interact with each other in an open and flexible environment. […] It uniquely combines insight generation and participant empowerment.

Nick Downes and Dr Julia Chim,  Independent evaluators
Macmillan Cancer Support

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We could not have anticipated this breadth of actionable insights nor asked for a greater impact from a single piece of work

Further’s research helped to RNIB change public attitudes towards blindness and blind people. The insights led to a major overall of the brand and the development of a new brand campaign: See Differently. New partnerships which resulted from this strategic shift generated £600K in benefit in kind.

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Further's online approach represents a cost-effective means of engaging with a wide group of individuals, many of whom are often harder to engage

Further helped Macmillan Cancer Support understand why the national Cancer Patients Experience Survey documents that ethnic minority, LGBTQ+ and older cancer patients consistently report more negative experiences and outcomes in cancer services.

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This project strengthens the case for including those with expertise through experience in delivering research

We helped Youth Futures Foundation understand ethnic inequalities in the impact of COVID-19 on young people’s lives. The research identified the depth and breadth of support needed to mitigate its effect.

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They bring rich contextual knowledge to make sense of the evidence

We helped explain empirical differences in the viewing behaviours of ethnic minority audiences documented by Research conducted by the Broadcasters Audience Research Board.

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